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evaluations, special education, IFSP, IEP, IHP and transitions to adulthood. |
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| You don t need to get technical, but give them information appropriate to their age-levels. For instance, if you are helping your cerebral palsied child with some exercises to help with their movement and muscle tone, their siblings may be curious. Instead of trying to explain the physiological reasons behind the exercises, you might say, They need some extra special exercises to help their legs get stronger, or Their muscles dont work the same as yours; he cant move around as well and he might not for a long time, so we need to help him a little more. Try not to tell you children half-truths, even if it seems easier at the time. Even if one answer may be easier for you to explain why your child is crying, saying hes sad when it is because of his cerebral palsy will only further confuse his siblings. Assuring your children that their sibling cannot die for cerebral palsy is important, as they will no-doubt quickly sense that something is wrong due to the frequent visits to many different doctors and therapists. You should also try to reassure your child that it is okay to feel strongly about their siblings disability, and that it isnt anyones fault that they have cerebral palsy. Remember, a straightforward approach diffuses fear and helps your child feel important and a vital part of the care-giving. Once you have explained your childs disability to your other children, you should still expect to have to re-explain it. Even once they understand that their sibling is disabled, they still may not know what their sibling can and cannot do, and as the disabled child grows and becomes stronger or begins to master the use of special mechanical aids and communications devices, what they can and cannot do will change drastically. You can help this process of understanding along by periodically pointing out your disabled childs small victories to his or her brothers and sisters. For instance, Remember when he couldnt walk? Now he can run on his crutches! Or, Isnt it amazing how she uses her communication board? Shes faster than all of us now! Not only will this help them to better understand their siblings progress, it will also be positive reinforcement of their attitudes and feelings towards their disabled sibling. As a parent, having a new child with special needs can be overwhelming, and having other children in the home already can lead to much competing for attention, even when the newborn is not disabled. Be assured that this is a normal reaction for older siblings, and as long as you do your best to balance the attention, it should eventually dissipate. Having other children in the home will in the short run complicate the matter of your childs special needs, as the stress of the adjustment may seem greater with more family members. In the long run, however, having other children in the home can immensely aid the social development of both the child with special needs and his or her siblings. To begin with, your childs siblings can help him or her to develop social skills, as it is not uncommon for cerebral palsied children to have some developmental difficulties in the realm of social interaction. Being comfortable around people closer to his or her age will help him learn to be himself, and not feel like he is always under pressure to perform. As for your children who are not disabled, studies have shown that having a child with disabilities has a positive influence on the lives of children in the family. These studies have shown that children who are actively involved with a brother or sister with a disability have a better sense of themselves and better relationships with others. They are also more sensitive and aware of the world around them. Furthermore, having a child with cerebral palsy in the family can result in new perspectives and a tolerance that might not have occurred otherwise. Children, however, are not the only members in your family equation hat must be taken into account. Grandparents and other relatives will also need to be told about your childs disability. There is no universal way to break the new of your childs cerebral palsy to your relatives, and the manner in which you do so will depend greatly on your relationship with them and whether or not they had any prior knowledge of any worries you may have had about you childs development. However you decide to tell them, be ready for a series of reactions. Like you, they may feel grief, anger, shock, denial or a vast array of other emotions. Your parents may feel that they are somehow to blame for your childs cerebral palsy because of genes, or they may even attempt to pin blame on you, your spouse or the medical profession. After they have begun to deal with the reality of your childs disability, family members will often overwhelm you with cures they have read about, or referrals to specialists they have heard about. While this behavior may be unsolicited, it is rarely meant as a means to belittle your parenting ability, and is generally just bourn out of a desire to help your child. Grandparents in particular tend to shower disabled children with affection, and are often tempted to smother, overprotect or spoil your child. This should always be discouraged, as it can impede normal social development and case resentment among other family members grandchildren. The adjustment of having a new family member with cerebral palsy is usually a large one, but is definitely not where your familys usefulness ends. While it is important for everyone after they have adjusted to treat your disabled child as an equal member of the family, it is also essential to the childs progress for his or her family to be their best source of support. Growing up with cerebral palsy is difficult, and an important role of the family is to take away any undue difficulty. It doesnt have to be just you that helps your child with exercises and stretches, or plays with him or her to help their skills develop. The whole family can be involved in the development of your disabled child, and having an understanding and supportive family while growing up with cerebral palsy can make all the difference. |
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evaluations, special education, IFSP, IEP, IHP and transitions to adulthood. |